Nurse and Social Worker Palliative Telecare Team and Quality of Life in Patients With COPD, Heart Failure, or Interstitial Lung Disease: The ADAPT Randomized Clinical Trial.

Importance: Many patients with chronic obstructive pulmonary disease (COPD), heart failure (HF), and interstitial lung disease (ILD) endure poor quality of life despite conventional therapy. Palliative care approaches may benefit this population prior to end of life. Objective: Determine the effect of a nurse and social worker palliative telecare team on quality of life in outpatients with COPD, HF, or ILD compared with usual care. Design, Setting, and Participants: Single-blind, 2-group, multisite randomized clinical trial with accrual between October 27, 2016, and April 2, 2020, in 2 Veterans Administration health care systems (Colorado and Washington), and including community-based outpatient clinics. Outpatients with COPD, HF, or ILD at high risk of hospitalization or death who reported poor quality of life participated. Intervention: The intervention involved 6 phone calls with a nurse to help with symptom management and 6 phone calls with a social worker to provide psychosocial care. The nurse and social worker met weekly with a study primary care and palliative care physician and as needed, a pulmonologist, and cardiologist. Usual care included an educational handout developed for the study that outlined self-care for COPD, ILD, or HF. Patients in both groups received care at the discretion of their clinicians, which could include care from nurses and social workers, and specialists in cardiology, pulmonology, palliative care, and mental health. Main Outcomes and Measures: The primary outcome was difference in change in quality of life from baseline to 6 months between the intervention and usual care groups (FACT-G score range, 0-100, with higher scores indicating better quality of life, clinically meaningful change ≥4 points). Secondary quality-of-life outcomes at 6 months included disease-specific health status (Clinical COPD Questionnaire; Kansas City Cardiomyopathy Questionnaire-12), depression (Patient Health Questionnaire-8) and anxiety (Generalized Anxiety Disorder-7) symptoms. Results: Among 306 randomized patients (mean [SD] age, 68.9 [7.7] years; 276 male [90.2%], 30 female [9.8%]; 245 White [80.1%]), 177 (57.8%) had COPD, 67 (21.9%) HF, 49 (16%) both COPD and HF, and 13 (4.2%) ILD. Baseline FACT-G scores were similar (intervention, 52.9; usual care, 52.7). FACT-G completion was 76% (intervention, 117 of 154; usual care, 116 of 152) at 6 months for both groups. Mean (SD) length of intervention was 115.1 (33.4) days and included a mean of 10.4 (3.3) intervention calls per patient. In the intervention group, 112 of 154 (73%) patients received the intervention as randomized. At 6 months, mean FACT-G score improved 6.0 points in the intervention group and 1.4 points in the usual care group (difference, 4.6 points [95% CI, 1.8-7.4]; P = .001; standardized mean difference, 0.41). The intervention also improved COPD health status (standardized mean difference, 0.44; P = .04), HF health status (standardized mean difference, 0.41; P = .01), depression (standardized mean difference, -0.50; P < .001), and anxiety (standardized mean difference, -0.51; P < .001) at 6 months. Conclusions and Relevance: For adults with COPD, HF, or ILD who were at high risk of death and had poor quality of life, a nurse and social worker palliative telecare team produced clinically meaningful improvements in quality of life at 6 months compared with usual care. Trial Registration: ClinicalTrials.gov Identifier: NCT02713347.

Relationships between Depressive Symptoms, Appetite, and Quality of Life in Heart Failure.

This analytical, cross-sectional study aimed to analyze the relationship between depressive symptoms, appetite, and quality of life (QoL) in 86 patients hospitalized with heart failure. Patients were assessed for depressive symptoms, appetite, and QoL using the Beck Depression Inventory-II, the Simplified Nutritional Appetite Questionnaire, and the Minnesota Living with Heart Failure Questionnaire, respectively. Relationships between sociodemographic and clinical variables, depressive symptoms, appetite, and QoL were analyzed using bivariate tests and linear regression models, with p < .05 considered significant. The factors associated with QoL were dependence for four activities of daily living (ADLs) (estimate = 15.4, 95% CI = 0.23 to 30.64, p = .046), minor depressive symptoms (estimate = -20.0, 95% CI = -28.3 to -11.73, p < .001), and appetite (estimate = -11.08, 95% CI = -20.5 to -1.62, p = .022). These results can support multi-professional assessment and development of interventions to promote better QoL, including addressing impaired appetite and food intake, the presence or increased intensity of depressive symptoms, especially in patients dependent for ADLs.

Efectividad de Intervención en enfermería para fortalecer la cooperación al tratamiento en pacientes con falla cardiaca / Effectiveness of nursing intervention to strengthen treatment cooperationinpatients with heart failure

Introducción: La falla cardiaca (FC) afecta a más de 23 millones de personas en el mundo. Se ha demostrado que las intervenciones de enfermería mejoran el conocimiento, comportamientos y reingresos hospitalarios. Objetivo: Determinar la efectividad de intervención de enfermería para fortalecer la cooperación al tratamiento en pacientes con FC. Métodos: Estudio pretest y postest cuasi experimental en una muestra conveniente de 70 pacientes con FC, grupo control (n=35) que recibió atención habitual y grupo experimental (n=35) tuvo la IE. Se utilizaron dos instrumentos: Escala Europea de Autocuidado EHFScB y la nueva escala de cooperación ECOOPFRGv1 previo proceso de validación por expertos. El estudio contó con el aval de comité de ética institucional y consentimiento informado de pacientes. Resultados: Se evaluó el efecto de la intervención de enfermería, los hallazgos evidenciaron que existió diferencia estadísticamente significativa (p=<0,001) en el grupo experimental con respecto a las mediciones obtenidas en el grupo control. Conclusiones: Se comprueba la efectividad de la intervención de enfermería para fortalecer la cooperación al tratamiento en los pacientes con FC. Los hallazgos sugieren la importancia de desarrollar programas de educación que se centren en mejorar la cooperación al tratamiento y los comportamientos de gestión del cuidado. (AU)

Introduction: Heart failure (HR) affects more than 23 million people worldwide. Nursing interventions have been shown to improve hospital knowledge, behaviors, and readmissions. Objective: To determine the effectiveness of nursing intervention to strengthen treatment cooperation in patients with CF. Methods: Pretest and quasi- experimental posttest study in a suitable sample of 70 patients with CF, control group(n=35) who received usual care and experimental group (n=35) had EI. Two instruments were used: European Self-Care Scale EHFScB and the new ECOOPFRGv1 cooperation scale after validation process by experts. The study was endorsed by the institutional ethics committee and informed consent of patients. Results: The effect of the nursing intervention was evaluated, the findings showed that there was a statistically significant difference (p = < 0.001) in the experimental group with respect to the measurements obtained in the control group. Conclusions: The effectiveness of nursing intervention to strengthen treatment cooperation in patients with CF was verified. The findings suggest the importance of developing education programs that focus on improving treatment cooperation and care management behaviors. (AU)

Clinical effectiveness and cost-effectiveness of ambulatory heart failure nurse-led services: an integrated review.

BACKGROUND: Globally the burden of heart failure is rising. Hospitalisation is one of the main contributors to the burden of heart failure and unfortunately, the majority of heart failure patients will experience multiple hospitalisations over their lifetime. Considering the high health care cost associated with heart failure, a review of economic evaluations of post-discharge heart failure services is warranted. AIM: An integrated review of the economic evaluations of post-discharge nurse-led heart failure services for patients hospitalised with acute heart failure. METHODS: Electronic databases were searched using EBSCOHost: CINAHL complete, Medline complete, Embase, Scopus, EconLit, Global Health, and Health source (Consumer and Nursing/Academic) for published articles until 22nd June 2021. The searches focussed on papers that examined the cost-effectiveness of nurse-led clinics or telemonitoring involving nurses to follow-up patients after hospitalisation for acute heart failure. GRADE criteria and CHEERS checklist were used to determine the quality of the evidence and the quality of reporting of the economic evaluation. RESULTS: Out of 453 studies identified, eight studies were included: four in heart failure clinics and four in telemonitoring programs. Five of the articles were cost-effectiveness analyses, one a cost comparison and two studies involved economic modelling The GRADE criteria were rated as high in five studies. In which, four studies examined the cost-effectiveness of telemonitoring programs. Based on the CHEERS checklist for reporting quality of economic evaluations, the majority of economic evaluations were rated between 86 and 96%. All the studies found the intervention to be cost-effective compared to usual care with Incremental Cost Effectiveness Ratios ranging from $18 259 (Canadian dollars)/life year gained to €40,321 per Quality Adjusted Life Years gained. CONCLUSION: Nurse-led heart failure clinics and telemonitoring programs were found to be cost-effective. Certainly, this review has shown that heart failure clinics and telemonitoring programs do represent value for money with their greatest impact and cost savings through reducing rehospitalisations.

Characterizing shared and distinct symptom clusters in common chronic conditions through natural language processing of nursing notes.

Data-driven characterization of symptom clusters in chronic conditions is essential for shared cluster detection and physiological mechanism discovery. This study aims to computationally describe symptom documentation from electronic nursing notes and compare symptom clusters among patients diagnosed with four chronic conditions-chronic obstructive pulmonary disease (COPD), heart failure, type 2 diabetes mellitus, and cancer. Nursing notes (N = 504,395; 133,977 patients) were obtained for the 2016 calendar year from a single medical center. We used NimbleMiner, a natural language processing application, to identify the presence of 56 symptoms. We calculated symptom documentation prevalence by note and patient for the corpus. Then, we visually compared documentation for a subset of patients (N = 22,657) diagnosed with COPD (n = 3339), heart failure (n = 6587), diabetes (n = 12,139), and cancer (n = 7269) and conducted multiple correspondence analysis and hierarchical clustering to discover underlying groups of patients who have similar symptom profiles (i.e., symptom clusters) for each condition. As expected, pain was the most frequently documented symptom. All conditions had a group of patients characterized by no symptoms. Shared clusters included cardiovascular symptoms for heart failure and diabetes; pain and other symptoms for COPD, diabetes, and cancer; and a newly-identified cognitive and neurological symptom cluster for heart failure, diabetes, and cancer. Cancer (gastrointestinal symptoms and fatigue) and COPD (mental health symptoms) each contained a unique cluster. In summary, we report both shared and distinct, as well as established and novel, symptom clusters across chronic conditions. Findings support the use of electronic health record-derived notes and NLP methods to study symptoms and symptom clusters to advance symptom science.

A psychometric evaluation of the Caregiver Contribution to Self-Care of Heart Failure Index in a Thai population.

BACKGROUND: Caregivers are major contributor to the self-care of patients with heart failure. The Caregiver Contribution to Self-Care of Heart Failure Index (CC-SCHFI) measures these contributions across three scales: self-care maintenance (symptom monitoring and treatment adherence); self-care management (dealing with symptoms); and confidence in contributing to the self-care (self-efficacy in managing self-care) of patients with heart failure. Informal caregivers play a vital role in supporting family members with heart failure in Thailand, yet no validated tool exists to measure their contribution. We examined the psychometric properties of the CC-SCHFI in a Thai population. METHODS: The CC-SCHFI was translated into Thai using a standard forward and backward translation procedure. A cross-sectional design was used to examine the psychometric properties of the Thai version of the CC-SCHFI in 100 family caregivers of heart failure patients in Southern Thailand. Confirmatory factor analysis was used to assess construct validity, and factor score determinacy coefficients were computed to evaluate internal consistency reliability. RESULTS: The Thai version of the CC-SCHFI demonstrated acceptable internal consistency (composite reliability of each scale ranged from 0.76 to 0.99). Reliability estimates were adequate for each scale (McDonald's omega ranged from 0.75 to 0.96). Confirmatory factor analysis supported the original factor structure of the instrument, with good fit indices for all three scales (comparative fit index = 0.98-1.00; root-mean-square error of approximation = 0.00-0.07). CONCLUSIONS: The Thai version of the CC-SCHFI appears to be a valid and reliable instrument for measuring caregiver contributions to self-care maintenance and self-care management as well as contributing to caregiver confidence in the self-care of Thai heart failure patients.

[Therapeutic education and telemonitoring of heart failure patients]. / Éducation thérapeutique et télésuivi des patients insuffisants cardiaques.

At the Jean-Minjoz regional University Hospital Center in Besançon (25), the therapeutic education of patients with heart failure is carried out by a multidisciplinary team. The education nurse conducts the individual interview. The COVID-19 epidemic has changed the organization of care. Tele-monitoring is becoming the norm, the service nurse contacts patients by telephone and registers them on one of the platforms after they have given their agreement.

The effect of nurse-led interventions on re-admission and mortality for congestive heart failure: A meta-analysis.

BACKGROUND: The European Society of Cardiology guidelines recommend the implementation of nurse-led heart failure programs to achieve optimal management of patients with congestive heart failure (CHF). In this analysis, we aimed to systematically show the impact of nurse-led interventions (NLI) on re-admission and mortality in patients with CHF (reduced ejection fraction). METHODS: Publications reporting the impact of NLI on readmission and mortality in patients with CHF were carefully searched from electronic databases. Rehospitalization and mortality were the endpoints. For this analysis, the latest version of the RevMan software was used. Risk ratios (RR) with 95% confidence intervals (CI) were used to represent data following analysis. RESULTS: A total number of 3282 participants with CHF were included in this analysis. A total of 1571 patients were assigned to the nurse-led intervention group whereas 1711 patients were assigned to the usual care group. The patients had a mean age ranging from 50.8 to 80.3 years. Male patients varied from 27.3% to 73.8%. Comorbidities including hypertension (24.6%-80.0%) and diabetes mellitus (16.7%-59.7%) were also reported. Patients had a mean left ventricular ejection fraction varying from 29.0% to 61.0%. Results of this current analysis showed that rehospitalization (RR: 0.81, 95% CI: 0.74-0.88; P = .00001) and mortality (RR: 0.69, 95% CI: 0.56-0.86; P = .0009) were significantly lower among CHF patients who were assigned to the nurse-led intervention. Whether during a shorter (3-6 months) or a longer (1-2 years) follow up time period, rehospitalization for shorter [(RR: 0.73, 95% CI: 0.65-0.82; P = .00001) vs for longer (RR: 0.81, 95% CI: 0.72-0.91; P = .0003) respectively] and mortality for shorter [(RR: 0.55, 95% CI: 0.38-0.80; P = .002) vs longer follow up time period (RR: 0.76, 95% CI: 0.58-0.99; P = .04) respectively] were significantly lower and in favor of the nurse-led interventional compared to the normal care group. CONCLUSIONS: This systematic review and meta-analysis of randomized controlled trials showed that NLI had significant impacts in reducing the risk of rehospitalization and mortality in these patients with CHF (reduced ejection fraction). Hence, we believe that nurse-led clinics and other interventional programs would be beneficial to patients with heart failure and this practice should, in the future be implemented to the health care system.

A Literature Review on the Benefits for an Interprofessional Educational Program to Increase Novice Nurse Awareness of Case Management in Heart Failure.

PURPOSE/OBJECTIVES: The purpose of this literature review is to examine the potential value for an interprofessional education program to increase novice nurse awareness of case management in heart failure (HF). PRIMARY PRACTICE SETTING: Acute care health care settings involving novice nurses. FINDINGS/CONCLUSIONS: Evidence demonstrates that interprofessional collaboration on transitional care interventions for HF patients reduces 30-day readmissions. Implementation of an interprofessional education program for novice nurses can be an effective intervention to decrease readmissions by increasing knowledge of the nurse case manager role and development of interprofessional relationships. IMPLICATIONS FOR CASE MANAGEMENT PRACTICE: Increased awareness of HF case management is important for novice nurses. Understanding the nurse case manager role and early interprofessional collaboration can improve patient health outcomes among the HF population. Therefore, an education program to build confidence and strengthen interprofessional partnership in HF case management for the novice nurse is warranted.

Integration of nursing services provided to patients with heart failure living at home: A longitudinal ethnographic study.

AIMS AND OBJECTIVES: This study aimed to (1) describe the development of integrated services between hospital-based heart failure nursing services and municipally located home care nurses' services and (2) identify the benefits of this collaboration for the development of home care nursing services. BACKGROUND: Governments have called for better integration of healthcare services to respond to demographic ageing. Clinical pathways have been used to enhance integration and assure continuity between primary and secondary care. Competencies in addressing advanced health issues among home care nurses must be improved. DESIGN: A longitudinal ethnographic study of the development of home care nursing services for persons living with heart failure. METHODS: Data were field notes from observations at meetings of the steering group designing the services, visits to patients' homes and from educational sessions. Interviews were conducted with the home care nurses, heart failure nurses and focus group meetings with nurses working in home care nursing. Reporting adhered to the Consolidated Criteria for Reporting Qualitative Studies checklist. RESULTS: In a collaborative project, nurses from the two settings developed nursing services to address signs indicating exacerbation of heart failure and risk of hospital visits, involving advanced heart failure monitoring and treatment in patients' homes. A clinical pathway was developed to assure effective assessment of patients' condition. The home care nurses gained new knowledge and developed work practices that called for different competencies. Access to consultation from specialised heart failure nurses was instrumental in this transition. CONCLUSIONS: The development of nursing services by integrating primary and secondary services facilitates translation of knowledge, competencies and understandings between nurses at different settings. Such integration can foster expertise in nursing services. RELEVANCE TO CLINICAL PRACTICE: The transfer of specialised healthcare services to primary care facilitates collaboration and sharing of knowledge, understanding and work practices.

Nurses' experiences of continuity of care for patients with heart failure: A thematic analysis.

AIMS AND OBJECTIVES: This study aimed to describe nurses' experiences of continuity of care for patients with heart failure. BACKGROUND: Heart failure is a life-influencing condition that causes varying care needs over time with risks of fragmentation. Nurses play an important role in caring for patients with heart failure. However, nurses' experiences of continuity of care seem to be less explored in this context. DESIGN: A qualitative study with a descriptive design. METHODS: Four focus groups were chosen to collect the data, and the analysis was made by using a method for thematic analysis. A purposeful sampling of nurses (n = 14) with experiences from hospital-connected heart failure clinics, primary healthcare centres and municipal home healthcare settings was recruited. The COREQ checklist was used in this study. RESULTS: The nurses' experiences of continuity of care for patients with heart failure were described in four themes: access and flexibility, responsibility and transparency, trustful and caring relationships and communication and collaboration. CONCLUSIONS: The results indicate that nurses have an excellent position to act as the "hub" in caring for patients with heart failure, but they need to have the possibility of networking and establishing trusting relationships with their colleagues. From the nurses' point of view, mutual trust between the nurse, the patient and the patient's next of kin is crucial for promoting and maintaining continuity of care in patients with heart failure. RELEVANCE TO CLINICAL PRACTICE: To promote continuity of care for patients with heart failure, nurses expressed the necessity of establishing trusting relationships in a continuity-promoting organisation with seamless coordination. Nurses can be the "hub" supporting a person-centred care approach based on the patients' needs. There seems to be a need for better collaboration with common guidelines across and within primary healthcare centres, hospital-connected heart failure clinics and municipal home healthcare settings.

O gerenciamento do autocuidado de pacientes com insuficiência cardíaca / Self-care management of patients with heart failure

Introdução: A insuficiência cardíaca (IC) configura-se como a via final das doenças cardiovasculares e como grande problema de saúde pública. Com o envelhecimento da população e consequente aumento do aparato tecnológico houve um incremento da sobrevida de pacientes com outros transtornos cardiovasculares, que ao longo do tempo evoluem para IC, imprimindo a estes pacientes a necessidade de estabelecer o autocuidado a fim de retardar a progressão da doença ou mantê-la sobre controle. Objetivos: Identificar as variáveis clínicas, sociais e demográficas do paciente assistido no ambulatório de Insuficiência Cardíaca em um Hospital público universitário; Verificar o autocuidado de pacientes com Insuficiência Cardíaca em um Hospital público universitário através do SCHFI v 6.2; Correlacionar o autocuidado com as variáveis clínicas, sociais e demográficas do paciente assistido no ambulatório de Insuficiência Cardíaca em um Hospital público universitário; Discutir os fatores intervenientes para o gerenciamento do autocuidado pelos pacientes de IC, a partir das variáveis clínicas, sociais e demográficas. Método: estudo transversal de abordagem quantitativa. Resultados: A amostra foi composta de indivíduos de idade entre 52 a 76 anos (78%), pretos e pardos compõe a maioria (62%), moradores da Baixada Fluminense (39,2%) e da Zona Norte do Rio de Janeiro (34,2%) e de escolaridade de até o Ensino Fundamental Incompleto (27,3%) e Completo (36,4%), com Classe Funcional II (41,8%), Fração de Ejeção Reduzida (57,4%), Etiologia predominante Isquêmica (32,9%), não reconhecem ter tido informações sobre a doença (61,5%), e já sofreram internação devido à Insuficiência Cardíaca (60,6%). O autocuidado foi inadequado na maioria dos participantes (81,4%), Escore Manutenção inadequado (88,6%), e Escore Manejo inadequado (61,8%), Escore Confiança inadequado (48,1%). Não houve correlação entre escores de autocuidado com as variáveis estudadas, porém houve correlação da manutenção inadequada com a prática de atividade física, e do manejo inadequado com o fato de afetar a família. Conclusão: O autocuidado como um processo de tomada de decisão precisa de suporte social, estruturas das equipes e articulação nos serviços de saúde para a equidade da assistência de enfermagem, e dos serviços de saúde.

Introduction: Heart failure (HF) is configured as the final route of cardiovascular diseases and as a major public health problem. With the aging of the population and the consequent increase in the technological apparatus, there was an increase in the survival of patients with other cardiovascular disorders, which over time evolve to HF, giving these patients the need to establish self-care in order to delay the progression of the disease. or keep it under control. Objectives: To identify the clinical, social and demographic variables of the patient assisted at the Heart Failure outpatient clinic in a public university hospital; To verify the self-care of patients with Heart Failure in a public university Hospital through SCHFI v 6.2; Correlate self-care with the clinical, social and demographic variables of the patient assisted at the Heart Failure outpatient clinic in a public university hospital; Discuss the intervening factors for the management of self-care by HF patients, based on clinical, social and demographic variables. Method: cross-sectional study with a quantitative approach. Results: The sample was composed of individuals aged 52 to 76 years (78%), blacks and browns make up the majority (62%), residents of Baixada Fluminense (39.2%) and the North Zone of Rio de Janeiro (34.2%) and schooling up to Incomplete (27.3%) and Complete (36.4%) Elementary Education, with Functional Class II (41.8%), Reduced Ejection Fraction (57.4%) , Ischemic predominant etiology (32.9%), do not recognize having had information about the disease (61.5%), and have already suffered hospitalization due to Heart Failure (60.6%). Self-care was inadequate in most participants (81.4%), Inadequate Maintenance Score (88.6%), and Inappropriate Management Score (61.8%), Inappropriate Trust Score (48.1%). There was no correlation between self-care scores and the variables studied, but there was a correlation between inadequate maintenance and the practice of physical activity, and inadequate management with the fact that it affects the family. Conclusion: Self-care as a decision- making process needs social support, team structures and articulation in health services for the equity of nursing care, and health services.

Terminologia especializada de enfermagem para cuidado à pessoa com insuficiência cardíaca crônica / Terminología de enfermería especializada para el cuidado de personas con insuficiencia cardíaca crónica / Specialized Nursing terminology for the care of people with chronic heart failure

Resumo Objetivo Construir uma terminologia especializada de enfermagem para o cuidado à pessoa com insuficiência cardíaca crônica. Método Estudo metodológico, realizado em duas etapas: identificação dos conceitos relevantes em artigos científicos relacionados à prioridade de saúde eleita e mapeamento cruzado dos conceitos identificados com os conceitos da CIPE®. Resultados Extraíram-se 333 conceitos únicos úteis ao cuidado de enfermagem relacionado à afecção em questão, logo submetidos à etapa do mapeamento cruzado com os conceitos da CIPE® 2019-2020. Foram classificados 201 conceitos como constantes e 132 não constantes. Na análise de similaridade e abrangência, 85% foram classificados como iguais e 15% similares. Os conceitos não constantes caracterizaram-se 44% como mais abrangentes, 11% mais restritos e 45% sem concordância. Quanto à classificação dos conceitos nos sete Eixos da CIPE®, caracterizou-se por Eixo Foco (50%), Eixo Julgamento (13%), Eixo Meio (12%), Eixo Ação (10%), Eixo Localização (9%), Eixo Tempo (4%) e Eixo Cliente (2%). Conclusões e implicações para a prática Foi possível construir terminologia especializada de enfermagem com base na CIPE® para o cuidado à pessoa com insuficiência cardíaca crônica, em que 40% dos conceitos que compõem a terminologia não estão constantes na versão 2019-2020 da classificação, sendo passíveis de inserção em versão posterior.

Resumen Objetivo Construir una terminología de enfermería especializada para el cuidado de personas con insuficiencia cardíaca crónica. Método Estudio metodológico, realizado en dos etapas: identificación de conceptos relevantes en artículos científicos relacionados con la prioridad de salud elegida y mapeo cruzado de los conceptos identificados con los conceptos de ICNP®. Resultados Se extrajeron 333 conceptos únicos útiles para la atención de enfermería relacionados con la afección en cuestión, que luego se sometieron a la etapa de mapeo cruzado con los conceptos de CIPE® 2019-2020. 201 conceptos se clasificaron como constantes y 132 como no constantes. En el análisis de similitud y exhaustividad, el 85% se clasificó como iguales y el 15%, como similares. Los conceptos no constantes se caracterizaron en un 44% como más completos, 11% más restringidos y 45% sin acuerdo. En cuanto a la clasificación de conceptos en los siete Ejes CIPE®, se caracterizó por el eje de Enfoque (50%), el Eje de Juicio (13%), el Eje Medio (12%), el Eje de Acción (10%), el Eje de Ubicación (9%), Eje de Tiempo (4%) y Eje de Cliente (2%). Conclusiones y contribuciones a la práctica fue posible construir una terminología de enfermería especializada basada en CIPE® para el cuidado de personas con insuficiencia cardíaca crónica, en la cual el 40% de los conceptos que componen la terminología no están incluidos en la versión 2019-2020 de la clasificación, estando sujetos a inserción en una versión posterior.

Abstract Objective To build specialized Nursing terminology for the care of people with chronic heart failure. Method Methodological study, carried out in two stages: identification of relevant concepts in scientific articles related to the elected health priority and cross-mapping of the concepts identified with the ICNP® concepts. Results A total of 333 unique concepts useful for Nursing care related to the condition in question were extracted, soon submitted to the cross-mapping stage with the concepts of ICNP® 2019-2020. 201 concepts were classified as constant and 132 as non-constant. In the analysis of similarity and comprehensiveness, 85% were classified as equal and 15% as similar. The non-constant concepts were characterized by 44% as more comprehensive, 11% more restricted and 45% without agreement. As for the classification of concepts in the seven ICNP® Axes, it was characterized by the Focus Axis (50%), Judgment Axis (13%), Middle Axis (12%), Action Axis (10%), Location Axis (9%), Time Axis (4%) and Customer Axis (2%). Conclusions and contributions to the practice It was possible to build specialized Nursing terminology based on the ICNP® for the care of people with chronic heart failure, in which 40% of the concepts that make up the terminology are not included in the 2019-2020 version of the classification, being subjected to insertion in a later version.

The efficacy of a nursing care and follow-up program for patients with heart failure: Study protocol for a randomized controlled trial.

BACKGROUND: Heart failure (HF) is one of the primary causes of the increasing public health costs, incidence rate and mortality of heart disease. As treatment options for the HF have evolved, people have a better understanding of overall burden of HF, resulting a more centralized method for the treatment of these patients with chronic diseases. At present, with the rapid progress of medical technology, the nursing mode must be updated accordingly. The objective of this trial is to investigate the effects of the program of nursing care and follow-up on life quality, self-care, and the rehospitalization of patients with HF. METHOD: This is a randomized controlled study to be carried out from November 2020 to March 2021 and was granted through the Ethics Committee of Changshan County People's Hospital (CCPH002376). The patients meet the following criteria will be included: the age of the patients is 18 years and above, and the functional classification is NYHA II or NYHA III. The patients with the following criteria will be excluded: patients who have received the by-pass surgery in the last 6 months; cancer patients are given radiotherapy or chemotherapy; patients with severe renal failure requiring dialysis; patients with chronic obstructive pulmonary disease who need ventilation; and patients with hearing or visual impairment. In our experiment, patient information scale, the life quality scale (The Left Ventricular Dysfunction Scale) and Self-Care of HF Index are utilized for the assessment. All the analyses are implemented with SPSS for Windows Version 20.0. RESULTS: Impact of experimental programs on outcomes will be illustrated in the Table. CONCLUSION: We hypothesize that the nursing care conducted for the HF patients may improve the life quality and self-care. TRIAL REGISTRATION NUMBER: researchregistry 6129.

Una revisión sistemática de las intervenciones para empoderar al paciente con insuficiencia cardiaca crónica en el entorno hospitalario / A systematic review of interventions to empower patient with chronic heart failure in hospital environment

El empoderamiento del paciente con insuficiencia cardiaca crónica (ICC) es clave para mejorar su calidad de vida, autonomía, autoestima, nivel de satisfacción y los costes sanitarios. El objetivo fue identificar las intervenciones de enfermería más efectivas para favorecer el empoderamiento del paciente con ICC en el medio hospitalario. Se seleccionaron ocho artículos para revisión (cuatro experimentales, dos cuasi-experimentales y dos revisiones sistemáticas). De su análisis se identificaron tres tipos de intervenciones: educativas, cognitivo-comportamentales y combinadas, siendo estas últimas las más efectivas. Se recomienda el uso del Empowerment Questionnaire como un instrumento válido y fiable para medir el empoderamiento del paciente con ICC hospitalizado. Dada la escasez de estudios sobre esta temática, esta revisión aboga por futuras investigaciones que potencien e incluyan intervenciones combinadas mediante una escala válida, fiable y específica para medir el empoderamiento de los pacientes hospitalizados con ICC

The empowerment of patients with chronic heart failure (CHF) is key to improving their quality of life, autonomy, self-esteem, level of satisfaction and healthcare costs. The aim was to identify the most effective nursing interventions to promote the empowerment of patients with CHF in the hospital context. Eight articles were selected for review (four experimental, two quasi-experimental and two systematic reviews). From their analysis, three types of interventions were identified: educational, cognitive-behavioral and combined, the latter being the most effective. The use of the Empowerment Questionnaire is recommended as a valid and reliable instrument to measure the empowerment of chronic hospitalized patients. Given the lack of studies on the phenomenon of interest, this review advocates for future research including combined interventions to empower hospitalized patients with chronic heart failure using a valid, reliable and specific scale

The Impact of Nurse-Led Cardiac Rehabilitation on Quality of Life and Biophysiological Parameters in Patients With Heart Failure: A Randomized Clinical Trial.

BACKGROUND: Cardiovascular diseases are the leading cause of mortality in the Indian subcontinent, accounting for 38% of deaths annually. One cardiovascular disease in particular, heart failure, is a growing public health problem both in India and worldwide. PURPOSE: Heart failure is a chronic, progressive disease with increasing rates of incidence and prevalence. This study was conducted to determine the influence of a nurse-led cardiac rehabilitation program on quality of life and biophysiological parameters in patients with chronic heart failure. In this study, it was hypothesized that participants in the cardiac rehabilitation program would report significantly more-positive changes in quality of life and biophysiological parameters than their peers who did not participate in this program. METHODS: In this randomized controlled trial, the participants were patients with chronic heart failure who had been admitted to a tertiary care hospital in India. The participants assigned to the intervention group received both nurse-led cardiac rehabilitation and routine care. In addition, intervention group participants received a booklet on cardiac rehabilitation, Healthy Way to Healthy Heart, at discharge and fortnightly telephone reminders about good cardiac rehabilitation practices. A standard questionnaire was used to collect targeted information on participants' general and disease-specific quality of life at 1 and 3 months postintervention. Biophysiological parameters such as body mass index, blood pressure, and serum cholesterol values were also measured. RESULTS: Two thirds of the participants in each group (65% in the intervention group and 66% in the control group) were between 51 and 70 years old. The mean score for the mental component summary of generic quality of life steadily decreased in the control group and steadily increased in the intervention group at the first and second posttests. CONCLUSIONS/IMPLICATIONS FOR PRACTICE: Nurses working in cardiology units play a pivotal role in educating and managing the health status of patients with heart failure. Providing cardiac rehabilitation to patients with heart failure benefits the quality of life of these patients. Nurses working in cardiology units should encourage patients with heart failure to practice cardiac rehabilitation for a longer period to further improve their quality of life.

[Using lived experiences and theoretical insights to gain a better understanding of the adaptation difficulties encountered by elderly patients with chronic heart failure during the hospital-to-home transition]. / Mieux saisir les difficultés d'adaptation des personnes âgées insuffisantes cardiaques en transition de l'hôpital vers le domicile à partir des expériences vécues et d'un éclairage théorique.

Heart failure is one of the most common reasons for hospitalization in older people, and the hospital-to-home transition can be unsuccessful for these patients. Existing care programs focus primarily on the physiological aspects of the disease and are rarely based on theory. Using Roy's adaptation model (1), the aim of this study was to develop a thorough understanding of the adaptation difficulties and factors that influence how well elderly patients with chronic heart failure cope with the hospital-to-home transition, in order to develop a nursing interventions program. Based on the process proposed by Sidani and Braden (2011), this qualitative descriptive study adopted a deductive approach, with the use of intermediary theories and empirical data, as well as an inductive approach, where older people with chronic heart failure (n=7), caregivers (n=6), and healthcare professionals (n=14) participated in semi-structured individual interviews. The triangulation of data highlights the difficulties and factors influencing adaptation at the physical, psychological, and social levels. Gaining a better understanding of the experience of older people with heart failure when it comes to their transition from hospital to home, and doing so with a holistic vision, provides information for interventions that can contribute to better management of chronic disease and a better quality of life for these elderly patients.

Heart Failure Training and Job Satisfaction: A Survey of Home Care Workers Caring for Adults with Heart Failure in New York City.

Background: Home care workers (HCWs), who include home health aides and personal care attendants, frequently care for adults with heart failure (HF). Despite substantial involvement in HF care, prior qualitative studies have found that HCWs lack training and confidence, which creates challenges for this workforce and potentially for patient care. Herein, we quantified the prevalence of HF training among HCWs and determined its association with job satisfaction. Methods: We conducted a cross-sectional survey of agency-employed HCWs caring for HF patients across New York, NY from 2018-2019. HF training was assessed with, "Have you received prior HF training?" Job satisfaction was assessed with, "How satisfied are you with your job?" The association between HF training and job satisfaction was determined with robust poisson regression. Results: 323 HCWs from 23 agencies participated; their median age was 50 years (IQR: 37,58), 94% were women, 44% were non-Hispanic Black, 23% were Hispanic, 78% completed ≥ high school education, and 72% were foreign-born. They had been caregiving for a median of 8.5 years (IQR: 4,15) and 73% had cared for 1-5 HF patients. Two-thirds received none/a little HF training and 82% felt satisfied with their job. In a fully adjusted model, HCWs with some/a lot of HF training had 14% higher job satisfaction than those with none/a little HF training (aPR 1.14; 95% CI 1.03-1.27). Conclusions: The majority of HCWs have not received HF training. HF training was associated with higher job satisfaction, suggesting that HF training programs may improve HCWs' experience caring for this patient population.

Effectiveness of nurse-led program on mental health status and quality of life in patients with chronic heart failure.

Current study was to evaluate the effectiveness of nurse-led program in improving mental health status (MHS) and quality of life (QOL) in chronic heart failure (CHF) patients after an acute exacerbation. CHF patients were enrolled after informed consent was obtained and were assigned into the control and treatment group. Patients in the control group received standard care. In the treatment group, patients received standard care plus telehealth intervention including inquiring patients medical condition, providing feedbacks, counseling patients, and having positive and emotional talk with patients. At the third and sixth month after discharge, participants were called by registered nurses to assess Mental Health Inventory-5 (MHI-5) and Kansas City Cardiomyopathy Questionnaire (KCCQ) scores. Compared to the treatment group, patients in the control group were less likely to have educational attainment ≥ high school degree and have a married status, but were more likely to have diabetes. No significant differences in MHI-5 (68.5 ±â€Š12.7 vs 66.9 ±â€Š10.4) and KCCQ (70.6 ±â€Š12.2 vs 68.7 ±â€Š10.9) scores at baseline between the control and treatment groups were observed. There were significantly differences in MHI-5 (72.7 ±â€Š15.6 vs 65.2 ±â€Š11.4) and KCCQ score (74.2 ±â€Š14.9 vs 66.4 ±â€Š12.1) at 3 months follow-up between control and treatment groups. Nonetheless, at 6 months follow-up, although MHI-5 and KCCQ scores remained higher in the treatment group, there were no statistically significant differences (MHI-5: 65.4 ±â€Š12.8 vs 61.4 ±â€Š10.0; KCCQ: 65.1 ±â€Š12.3 vs 61.9 ±â€Š10.3). After multivariate regression analysis, not receiving nurse-led program were significantly associated with reduced MHI-5 (odds ratio [OR] 1.25% and 95% confidence interval [CI]: 1.14-1.60) and KCCQ (OR: 1.20% and 95% CI:1.11-1.54) scores. Nurse-led program is helpful to improve MHS and QOL in CHF patients after an acute exacerbation. However, these achievements are attenuated quickly after the nurse-led intervention discontinuation.